I cannot believe that it has been 5 whole months since we welcomed this dear sweet boy into our family.
Charlie continues to do all the baby things he should be doing, and is such an incredibly easygoing and happy-go-lucky guy.
He’s in love with food — so far he’s given chicken, ground beef, bananas, blueberries, grapes, strawberries, cucumbers, zucchini, sweet potatoes, yellow beans, and carrots (phew!) a try. Cucumbers and chicken seem to be real winners!
We got a call today that Charlie will be booking in on October 11th for 3 days at Sick Kids for a video EEG, so we can hopefully catch one of his episodes on the monitor and find out if they are/aren’t seizures once and for all. It sucks, but it’s one of those necessary evils I suppose… I’m sure it will be harder on me than him!
Not much else to report for the moment — we see the paediatrician again on Sept 9 and we have our first NICU developmental follow-up on Sept 14. Fingers crossed those go well — we are really anxious to see what Sick Kids thinks of his progress given the severity of his diagnosis at birth. His ped has had zero concerns so far and we haven’t see anything out of the ordinary.
I still feel like I’m living in the land of “when will the other shoe drop” but also counting our lucky stars every day that he is doing so well.