Charlie’s 14 month update

Annnnnnd just like that, in the blink of an eye, more than a year has passed since our second little guy came to join us.

Sorry that I’ve been so quiet on the Charlie front — there just hasn’t been anything to update with. He’s doing so well!

He has become quite the little shishter lately, and loves to do everything the rest of the family does.

After spending his first year focused on the physical, Charles is now catching up with all the communications skills he’d pushed to the side. He’s signing milk, more, eat, and slide. He can say (with greater clarity each day) ball, Declan, mama, dada, balloon, nana (banana), milk, BeatBo, kitty, water, and more.

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Happy first birthday, Charlie!

Today you are 1. Justin Trudeau is the Prime Minister, gas costs about $1.05/L, and if current trends continue, there soon likely won’t be any papers left for me to tell you what the front page story was.

Gone (mostly) are the tears, fears, and uncertainties of what your future holds, and in their place is hope. Hope for who you are now and who you will become. Hope for each day that we are blessed to have you with us. Hope that with each day you simply are, you are beating any odds that may have been stacked against you in those early days.

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Charlie’s 5 month update

I cannot believe that it has been 5 whole months since we welcomed this dear sweet boy into our family.

Charlie continues to do all the baby things he should be doing, and is such an incredibly easygoing and happy-go-lucky guy.

He’s in love with food — so far he’s given chicken, ground beef, bananas, blueberries, grapes, strawberries, cucumbers, zucchini, sweet potatoes, yellow beans, and carrots (phew!) a try. Cucumbers and chicken seem to be real winners!

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Physiotherapy visit #2

Hey guys –

Just a quick note to say that Charlie saw his PT yesterday and she says she doesn’t need to see us anymore! He is doing so well that he is literally off the chart.

He’s doing things a 6-month-old should be doing and she’s so pleased with his progress from one month ago.

We need to still be mindful of his side preference, but as long as he is using both to any extent then that is fine. YAY CHARLIE!!!!!

Charlie’s 4 month update

Hello everyone! Can you believe that Charles is already 4 months old?! Me neither.

Little man is doing wonderful! We saw the doc today for his 4 month well baby, where he got the second round of 2 of his vaccines. He now weighs just over 16 pounds, is still 99%ile for his height, and his head circumference is back on track (he dropped off a bit at 2 months).

The doc says that Charlie has such great head control he can now ride in the stroller proper, and doesn’t need the bucket seat if we want to change things up for him. He also gave us the go ahead to start introducing solids, since Charlie has been SO interested in everyone’s food and drink lately. (and again, he has the head control required). Since he has not had any issues with his gag/suck/swallow reflex, we’ll try him with baby led weaning the way we did Declan.

Charlie is now rolling both directions, sitting unassisted for up to 60 seconds (even longer with a couple of pillows around him), bearing his weight on his legs, grabbing and holding all the toys, and making all sorts of vocalizations — recently trying his hand at blowing raspberries this week. He’s really had quite the developmental leap in the last few weeks.

He’s sleeping a bit worse, but is SUCH a happy baby overall.

We see his pediatrician again in September. We also see the neonatal development follow-up clinic in September to track his progress so far. I’m nervous for that appointment, but whatever comes of it we’ll deal with. We don’t see neurology until October (I really hope we get the OK to wean off his medication then!!!) and we are in queue to have a 24-72 hour EEG at Sick Kids to hopefully catch one of his “episodes” on the monitor and rule out seizure for good. I’m still hoping it’s just a funny sleep thing for him and not seizure activity. Fingers crossed.

Charlie is going to spend the rest of the summer hanging with big brother until he goes to school, maintaining his schedule of PT, massage, and mom & me music classes.

Two and a half months later

From Charlie’s private Facebook page (yeah, he’s that cool!)


Hey guys! Long time no update.

Charles has been doing well at home since the last update nearly two months ago. He’s quickly coming up on three months old. The time sure does fly!

Charlie has become the biggest smiley guy and is the chattiest little man I know — no small feat considering how much big brother likes to talk! He’s slowly but surely gaining a bit more neck strength and trunk control, however, when he’s tired he becomes very floppy. We’ve been spending lots of time on our tummy to help Charlie develop all those important muscles, and just last weekend he ROLLED OVER for the first time from his belly to his back. He’s done it several times since then too! This is huge for his development so we’re keeping our fingers crossed for more great things from him.

Charlie did give us a bit of a scare with some repetitive eye movements that were a bit concerning. We ended up back at Sick Kids thinking they could be seizures, so Charlie had an EEG. We saw the neurologist last week and they said that his EEG looked normal (yay! yay! yay!), and there was no signs of seizures during the EEG. However, without catching one of these episodes on the EEG, they cannot say for certain one way or another if the episodes are seizures or just a benign sleep thing. So we’re left to wait and see some more. If they become more frequent, last a long time, or he has issues with breathing during them then we are to call the neurology clinic to be seen ASAP. As it stands we continue on status quo with his medication and monitoring until he’s seen for follow-up in October.

We also got Charle’s neonatal development clinic appointment booked — so he’ll see them in September to track his physical development and milestones. The neurologist we saw last week has recommended getting Charlie into physiotherapy and occupational therapy, as there is stiffness and muscle issues already apparent. We are just waiting for when we see the paediatrician (next week) to get that referral set up for him. Charlie continues to love his baby massages from mama, and we notice marked improvement in overall muscle ‘calmness’ when he gets them on the regular.

Aside from rolling over, Charlie’s a huge fan of looking at himself in the mirror. (Because he’s so handsome, DUH!) He also loves to touch knitted blankets. His baby crinkle paper is his favourite toy — he loves putting it in his mouth and over his face (probably because it’s such a cool sound and sensation.) He’s slowly developing his skills with reaching for and grabbing things. He can’t quite get his body to move the way he wants it to, which causes some frustrated cries, but he keeps trying. He tracks us very well and still loves watching his big brother showing off for him.

Upcoming for Charles is a visit with the paediatrician, where he’ll get the second part of his first set of vaccines. With our doctor’s OK we’re vaccinating on a spaced out schedule so that it doesn’t overload his already fragile system. We start mom and baby music classes next week. Charlie really seems to love music (and it’s great for the brain) so we’re looking forward to it. It will also be nice to do some “normal” mom and baby things and not focus so much on the medical aspect of Charles’ care.

Physiotherapy visit #1

Charlie had his first physio session today. His therapist scored him between the 50th & 75th percentile. He’s doing almost everything he should be for a baby his age.

He’s got some left-side preference that we’ll be working over the next little bit, encouraging him to use his right hand and look at things to the right. We’ve been told to carry on doing what we’re doing and will see Adrienne again in a month.

All in all a great visit! Affirms even more what a miracle our little boy is!

One month later

From Charlie’s private Facebook page (yeah, he’s that cool!)


Hello everyone. I’d meant to get this posted on Saturday in celebration of Charlie turning one month old, but I’m finding that having two littles in the house makes getting nearly anything done (especially writing things) next to impossible!

Charlie has been doing very well over the past month. I would say he’s fully acclimated to his meds now as he has himself a regular wake/sleep routine that is well within the limits of a neurotypical (NT) baby. We’re so lucky that he sleeps (mostly) through the night, only waking to eat once or twice. (Don’t worry, we paid our dues with Declan!) 

We saw his paediatrician for his first appointment last week. She is a nice lady and has told us the best thing we can do for him is to give him lots of tummy time in order to build his trunk and arm strength. Other than that she thinks he looks good and we don’t need to be doing anything else special for his development.

We also saw his family doctor last week as well just to check in. He really likes the look of Charlie and says that if he didn’t know his history, he would just consider him a regular old baby, given the way he presents. Although none of us have a crystal ball, he says that based on how Charles appears now, he will likely be able to walk unassisted as he gets older. This was a huge worry for us, so he’s given us much hope.

Charlie is doing all the NT baby things he should be doing. He’s lifting his head and looking around when on your chest/the floor and he is becoming quite vocal. He can kick his feet into the mattress to try to shimmy himself, and he’ll do it “standing” on mum & dad too. He’s just started smiling as well which is such a beautiful sight. Hitting all of these milestones on target bodes well for long-term success and we couldn’t be more excited and proud of our little man.

Our little tank is up to 11 pounds 8 ounces (at last count) and is in the 97th percentile for his height and weight. Declan grew the same. We make giants, apparently.

Charlie enjoys spending his days swinging, playing on his mat, being held constantly by mama/dada and listening to big brother sing to him. He’ll see the family doctor in a month’s time for his regular two month checkup and vaccines, and then the paediatrician again at 3 months of age. His follow up with the neurology department at Sick Kids is scheduled for August 9th, when he’ll also have a sleep-deprived EEG. His neonatal follow-up (which tracks milestone development), will be in early September.